I started taking meds [Sinemet] in December of 2018. This after being meds free for seventeen years. I started out taking six tablets [600 mg] per day and in April was able to cut this back to five tablets, which is the amount I am taking presently.
I take 2 tablets at 9 am, 1.5 tabs at 3 pm and 1.5 tabs at 10 pm.
In November of 2019, quite suddenly, I started noticing a significant difference between when the medication is on, when it’s working, and when it’s off, when it’s no longer working. Prior to that, I really couldn’t tell the difference. More recently, I have noticed a significant difference when the meds first wear off. I experience much more pronounced trembling, brain fog and unsteadiness on my feet. This tends to lessen after a while. As a whole though, even during off times, there is a noticeable improvement in the symptoms I experience compared with a year ago.
Typically, it takes about a half hour for the meds to take effect and they last for approximately three hours.
This is all new to me of course, taking medication, on and off times and the changes in symptoms, but what I plan to do is really focus on the regimen I have created to see if things like meditation, qigong, breathing exercises, spending time in nature, exercising and laughter, make a difference on the off-time symptoms I experience, particularly during the time when the meds first wear off. Rather than spending my time fretting about my situation, I plan to learn what I can from this ‘on-time, off-time’ experience.
In the meantime, I would love to hear from anyone who would like to share their medication experience.