I’ve always tried to maintain a sense of humor in regards to dealing with this pesky health condition we call Parkinson’s … or to acronym it … PD! [The military would likely refer to it as Papa Delta!] It can certainly be a challenge … maintaining a sense of humor that is, not, remembering the military alphabet! In any event, thought you might be able to relate to this fictional conversation!!!
“Hi Bobbo, how are you doing?”
“Good, Andy, how bout you?”
“Great! How did you make out with the doctor?”
“Not so good.”
“NsG? What happened? What did he tell you?”
“Said I have Parkinson’s.”
“Yep!” Continue reading →
It has now been almost nine months since I started taking medication. I started in December, 2018, after experiencing the symptoms of PD medication-free for almost 17 years. I was pretty much forced into this decision after worrying myself into a state of extreme anxiety and immobility and a hospital stay.
Initially, I was put on a combination of Sinemet [6 tablets a day … 100 mg levodopa and 25 mg of carbidopa per tab] and Zoloft [50 mg per day]. Within a week, I regained my mobility and was back home shoveling snow. It was a dramatic change!
I started weaning off Sinemet almost 6 weeks ago and I’ve decided to put the weaning off process on hold for the time being. I’m doing this for two reasons. First, the last two dosage reductions have been very challenging with days of more intense symptoms and moments of anxiety and panic. Second, I have a couple of long trips coming up in the next month and a half and these tend to be rather stressful, as I have experienced, making weaning off that much more difficult.
Last week, Mari and I took a trip to Toronto, so she could pick up her new car [a Ford Ecosport] and we could do a little shopping and visit my children.
It is a six-hour drive and normally, leading up to it, I would be experiencing some trepidation and anxiety because I don’t respond favourably to these long trips. However, on this occasion, I was actually feeling quite excited, for two reasons. First, since going on medication and implementing a more rigourous daily regimen with more emphasis on CBD oil, breathing, meditation and Qigong, I have been feeling much better and wanted to see how the drive would affect me. Second, my middle daughter is with-child and scheduled to give birth on July 2, and I am preparing to drive down to visit my new grandchild in the event Mari is up north working.
As a follow-up to my previous post about weaning off medication, I would like to thank my friend Jeff for bringing to my attention, compounding!
Compounding is the process of customizing medications based on each person’s individual needs. Compounding is how medications used to be created before big pharma got involved and began mass-production.
In this case, compounding is deemed to be a better approach to weaning off PD medications than simply reducing the number of pills we take, as it is less likely to cause side-effects or adverse reactions.
According to Robert Rodgers, author of, The Road to Recovery from Parkinson’s Disease, we would be well advised to wean off medication under the direction of a compounding pharmacist because they have more experience than doctors. They are trained in this sort of thing, whereas doctors are not. They also have more knowledge of each medication.
For more information, please check out the comment Jeff left in the “Comments” section of my post on “my experience with medication” or check out Robert Rodgers response to an inquiry about coming off Sinemet.
One of the most frequent questions I am asked, is how to get off medication. Be it PD meds, anxiety meds or both, there is a genuine desire to be medication free, and thus, free of side-effects and the inevitable loss of efficacy of the medication … it is well-known that over time PD meds lose their efficacy, eventually becoming completely ineffective, the outcome of which is quite grim. Moreover, for the vast majority of people experiencing the symptoms of Parkinson’s disease, and who believe recovery is possible, recovery will involve coming off medication at some point, and this too quite frankly can be a disconcerting prospect. It is akin to a drug addict going through withdrawal.
It has now been more than two months since I began taking PD and anxiety medications. Presently, for PD symptoms, I am taking 600 mg of levodopa and 150 mg of carbidopa per day. I take two levodopa-carbidopa tablets three times per day. For anxiety symptoms, I am taking 50 mg of Sertraline HCL per day [1 capsule at bedtime].
I should also mention that I am taking 40 mg of CBD oil [medical marjuana] each day [20 mg twice per day in between the PD meds]. I am also doing a lot more Qigong every day and I strongly believe that this is helping [particularly the lift chi pour chi down routine].
I recently returned from a trip to southern Ontario where I attended my daughter’s wedding and spent time visiting friends. As much as I enjoyed the trip [which I will blog about shortly] it was very stressful and set me back a bit. I am happy to be back home enjoying tranquility here on Manitoulin Island … if a windy day can be considered tranquil!
I have told you in previous posts about David Thompson, Bianca Molle, Howard Shifke and John Coleman, all of whom have completely recovered from Parkinson’s Disease. I have also written about John Pepper, the South African who has used a conscious walking program to completely neutralize his symptoms. Thanks to blog reader, Jimmy, I would like to share with you another success story, Colin Potter, who has used a combination of a ketogenic [high fat] diet, supplementation, detoxification and exercise to get off medication and completely neutralize the symptoms he was experiencing. He claims that he hasn’t fully recovered, but he no longer experiences any symptoms. His interview is well worth watching.
The moment I found out I had Parkinson’s I made the decision to heal it naturally. Initially, I thought I could heal myself simply by addressing the underlying emotional root cause. Why not, I healed migraine headaches that were afflicting me at a rate of three to four times a week. I have since learned that this is not enough. Fixing the physical body is also an important part of the process with Parkinson’s.