I started weaning off Sinemet almost 6 weeks ago and I’ve decided to put the weaning off process on hold for the time being. I’m doing this for two reasons. First, the last two dosage reductions have been very challenging with days of more intense symptoms and moments of anxiety and panic. Second, I have a couple of long trips coming up in the next month and a half and these tend to be rather stressful, as I have experienced, making weaning off that much more difficult.
Last week, Mari and I took a trip to Toronto, so she could pick up her new car [a Ford Ecosport] and we could do a little shopping and visit my children.
It is a six-hour drive and normally, leading up to it, I would be experiencing some trepidation and anxiety because I don’t respond favourably to these long trips. However, on this occasion, I was actually feeling quite excited, for two reasons. First, since going on medication and implementing a more rigourous daily regimen with more emphasis on CBD oil, breathing, meditation and Qigong, I have been feeling much better and wanted to see how the drive would affect me. Second, my middle daughter is with-child and scheduled to give birth on July 2, and I am preparing to drive down to visit my new grandchild in the event Mari is up north working.
Let me state for the record, right up front, when it comes to singing, I’m no Freddy Mercury! Somebody did tell me one time that I sing like Bob Dylan, but not as good as Bob! I’m pretty sure that wasn’t meant to be a compliment!
There, that out of the way, I am thrilled to report that I can sing again! I realized recently when I decided to belt out Hasn’t Hit Me Yet by Blue Rodeo that my voice was back, pretty much 100%. And the only thing I can attribute it to, is chiropractic!
One of my favorite pasttimes up until 2013, was playing the guitar and jamming with friends. By 2013, my symptoms had progressed to the point where I had to give it up. I lacked the dexterity to fret the strings and the coordination to strum.
I have played very little since.
Whether playing by myself or jamming, I also enjoyed singing, but along the way, I also lost my voice. I couldn’t carry a tune or sing in key!
But since resuming chiropractic treatments in January, which includes the release of tension in my neck muscles, my voice has returned. Perhaps this release of tension has freed up my vocal chords. Whatever the reason, I am excited and grateful for it!
If you have had a similar experience, please share!
Wishing you many blessings!
As a follow-up to my previous post about weaning off medication, I would like to thank my friend Jeff for bringing to my attention, compounding!
Compounding is the process of customizing medications based on each person’s individual needs. Compounding is how medications used to be created before big pharma got involved and began mass-production.
In this case, compounding is deemed to be a better approach to weaning off PD medications than simply reducing the number of pills we take, as it is less likely to cause side-effects or adverse reactions.
According to Robert Rodgers, author of, The Road to Recovery from Parkinson’s Disease, we would be well advised to wean off medication under the direction of a compounding pharmacist because they have more experience than doctors. They are trained in this sort of thing, whereas doctors are not. They also have more knowledge of each medication.
For more information, please check out the comment Jeff left in the “Comments” section of my post on “my experience with medication” or check out Robert Rodgers response to an inquiry about coming off Sinemet.
It has now been more than two months since I began taking PD and anxiety medications. Presently, for PD symptoms, I am taking 600 mg of levodopa and 150 mg of carbidopa per day. I take two levodopa-carbidopa tablets three times per day. For anxiety symptoms, I am taking 50 mg of Sertraline HCL per day [1 capsule at bedtime].
I should also mention that I am taking 40 mg of CBD oil [medical marjuana] each day [20 mg twice per day in between the PD meds]. I am also doing a lot more Qigong every day and I strongly believe that this is helping [particularly the lift chi pour chi down routine].
A few weeks ago I noticed that even though I was now taking PD medication, I was experiencing worse trembling. Then I went for a chiropractic treatment … the first one since October … and I noticed an immediate improvement. The next day I went for another treatment and experienced further improvement. It reminded me of the importance of bodywork for minimizing certain symptoms, particularly trembling!
In a recent conversation, Mari and I agreed that the state of our bodies is largely a reflection of the quality of our thoughts. Yes, nutrition plays a role, as does chemical toxicity, exercise, stretching, relaxation and correcting physical trauma, but more than anything else, it’s our thoughts that determine whether our bodies are going to be in a stressed [fight or flight] state or a relaxed state, and thus, in good health or not.
Some days I am challenged to accept the symptoms I experience and today is one of those days! I am presently in the middle of a Bowen purging and consequently I am experiencing extremely intense symptoms, especially as it relates to loss of balance, freezing and shuffle walking. Bowen purging seems to bring up a lot of anger which underneath feels like helplessness and shame. Today I’m feeling a lot of anger.
I recently returned from a trip to southern Ontario where I attended my daughter’s wedding and spent time visiting friends. As much as I enjoyed the trip [which I will blog about shortly] it was very stressful and set me back a bit. I am happy to be back home enjoying tranquility here on Manitoulin Island … if a windy day can be considered tranquil!
Difficulty swallowing can be one of the most challenging [if not terrifying] aspects of this condition we call Parkinson’s disease. In fact, it was the increasing difficulty I was having swallowing that contributed to the panic attacks I experienced in 2014. I was under the mistaken assumption I would eventually require feeding tubes. The neurologist I was seeing at the time assured me that this was not the case.